“Do I carry my precious baby to term only for her to pass or suffer or do I terminate? I sat for a week trying to decide and also reading the internet about other parents who went through the same thing as me.” Every baby here matters and YOUR decision is the right one. Thank […]
Do You Need to Deliver at a NICU?
Did any of you deliver at a hospital that did not have a NICU? I live in a small town and our hospital doesn’t have a one… Did any of you deliver at a hospital that did not have a NICU? I live in a small town and our hospital doesn’t have a one… At […]
Is Palliative Care the Right Choice for My Baby?
Blog post about the ways that palliative care can enhance quality of life for patient’s families/it’s value for T18 families. https://mountainx.com/living/pediatric-palliative-care-enhances-quality-of-life-for-patients-families/
ACOG Issues New Guidelines on NIPT
ACOG issues New Guidelines on newer NIPT screening tests. The American College of Obstetricians and Gynecologists (ACOG) issued new Committee Opinion on the use of Given the performance of conventional screening methods, the limitations of cell-free DNA screening performance, and the limited data on cost-effectiveness in the low-risk obstetric population, conventional screening methods remain […]
T18F Director Challenges PPV of NIPT
THE TRISOMY 18 FOUNDATION’S DIRECTOR GIVES TALK AT NATIONAL CONFERENCE At the Trisomy 18 Foundation, we work to educate healthcare professionals who are on the front lines of delivering a Trisomy 18 diagnosis. Last month, our Executive Director Victoria Miller spoke at the National Society of Genetic Counselors Conference in Seattle, Washington. We regularly build […]
The Term “Incompatible with Life” and Trisomy 18
The Term “Incompatible with Life” and Trisomy 18 “Incompatible with life” is a term any parents would dread hearing. The shock and fear and grief surrounding such a term makes its usage fraught. Parents in the Trisomy 18 community have heard this term used to label their child after a prenatal test or after a […]
